About the Patient Advisory Committee
A clear priority of EDENT1FI is to keep the needs and concerns of people living with Type 1 Diabetes at the center of the project. The involvement of patients is streamlined by the Patient Advisory Committee (PAC).
The Patient Advisory Committee gives a voice to the experiences, opinions and desires of the patients and their relatives to help ensure that EDENT1FI’s goals and strategy are closely aligned with the goals of people living with, and affected by Type 1 Diabetes (T1D). By bringing a powerful patient and family perspective to EDENT1FI, the PAC helps ensure EDENT1FI delivers a patient-centric approach and specific outcomes with the potential to improve the lives of people with Type 1 Diabetes.
Specific activities
We (the PAC) advise the Management Board of EDENT1FI providing input in a number of areas including informed consent, protocols review and relationships with regulatory authorities and patient organizations who are interested in the EDENT1FI project. Through EDENT1FI’s scientific network, we have a chance to connect with patients from many European countries. We help to communicate the results to a wider public and share feedback. We work closely with the Type 1 Diabetes community, taking their views into consideration for EDENT1FI.
Above all, the members of this committee act as Type 1 Diabetes ambassadors within EDENT1FI, helping to retain focus on what matters the most, that is, the people living with this disease every single day of their lives.